Sofia with birthday balloons Active fundraiser

7-year-old Sofia has been battling SMA since birth. Today she fights for every movement and every swallow!

Spinal Muscular Atrophy (SMA) has been stripping Sofia of her most basic physical abilities since early childhood. She has endured a grueling path where even her first independent swallow was a monumental victory. Today, Sofia is making remarkable progress, but without constant, intensive rehabilitation, her muscles quickly fade away. Every pause in treatment threatens to erase 7 years of relentless struggle!

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What is Spinal Muscular Atrophy (SMA)?

Spinal Muscular Atrophy (SMA) is a severe genetic neuromuscular disease in which motor neurons — specialized nerve cells in the spinal cord responsible for sending signals to muscles — gradually degenerate and die.

Without these essential impulses, muscles stop working, weaken, and progressively atrophy. The condition deprives a child of the ability to walk, sit, hold their head up, and in severe stages, to swallow and breathe independently.

In SMA, muscles literally “forget” how to perform the simplest actions, turning every swallow and movement into a daily battle. However, thanks to modern therapy and continuous rehabilitation, the nervous and muscular systems can be sustained. Systematic treatment helps retrain the body, preserve motor skills, and give the child a chance at a full life.

This is Sofia

Sofia sitting on a therapy simulator
Sofia at a rehabilitation session
Sofia smiling, resting her chin on her hand

Questions donors ask

Who are you legally?
MTÜ LumiKids — a non-profit association registered in Estonia, registration No. 80674528. Contact: info@lumiki.org.
What if a fundraiser collects more than needed?
If we raise more, the surplus goes to a related program for children with similar needs.

A child's treatment cannot wait for next month

When a child needs surgery or a device, time decides everything. We cover medical needs quickly and support the child through to recovery.

Public reports every month · donor reply within 48 hours

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